Wednesday, July 30, 2014

Social Media Communication Affecting ‘Blind’ Clinical Trials


Finally, an article was posted this morning by the Wall Street Journal about social media communication compromising drug trials. Working at a cancer hospital, we have a number of clinical trials that are testing new therapies, drugs, and treatments. I have heard before from healthcare professionals that they worry about what information is being shared online about the trials. Even though the healthcare team explicitly explains the importance and rules of the study, patients can and sometimes do still compromise the research.  I think it is important that the FDA consider establishing social media communication policies for subjects in trials to follow. It is also vital that the FDA create guidelines for researchers to follow when they discover subjects in trials communicate with one another on social media in order to not compromise the studies.  I understand that patients need an outlet to communicate and learn more about their treatments; however, I feel that drug trials are trying to determine effective treatment options that can be used to save the lives of many. Additional regulations should be placed to ensure the accuracy of the trials. Anyway, enough of my rambling. It is a good post, long…but really important in that it brings to light an issue several researchers are experiencing.